Elizabeth Hernberg-Ståhl M.Sc.
Elizabeth has more than thirty years experience from International Biotech and Pharmaceutical Industry, whereof near twenty in the orphan drug sector and late phase drug development.
She has an in-depth expertise in designing and successfully managing global patient registries within the area of orphan rare diseases.
Elizabeth has published numerous papers and co-authored books the latest ones;
- ISPOR Taxonomy of Patient Registries: Classification, Characteristics and Terms. ISBN 978-0-9743289-4-2
- Orphan Drugs; Understanding the Rare Disease Market and its dynamics
Elizabeth Hernberg-Ståhl and Miroslav Reljanovic” Woodhead publishing. ISBN 978-1-907568-09-1
Elizabeth has presented at several congresses on topics related to orphan rare diseases e.g.;
- World Orphan Drug Congress Geneva 29–30 November 2012; Natural history studies: setting the stage for successful orphan drug development
- Orphan Drugs & Rare Diseases; Innovative strategies for getting orphan drugs to where they are needed.London 8–10 October 2012
- 17th ISPOR Annual International Congress; Short Course Real World Data; Patient Registries,Washington, DC, USA 2–6 June 2012
- 2nd Annual Optimizing Orphan Drug Development, Lyon 19–20 January 2012
- Pre-conference workshop: Innovative Solutions to Data Capture, Late Phase Drug development World London 6 December 2011
- 14th ISPOR Annual European Congress; Short Course Real World Data; Patient Registries,Madrid 5 November 2011
- Rare Disease Research Forum, Karolinska Institute, Stockholm, 21 February 2011
- 1st World Orphan Drug Congress, Geneva November 29–December 1, 2010
- 13th ISPOR Annual European Congress; Short Course Real World Data; Patient Registries,Prague 6 November 2010
- The European Network of Expertise for Rare Paediatric Neurological Diseases (nEUroped) Brussels 21–23 November 2010
- 5th European Conference on Rare Diseases ECRD Krakow 13–15 May 2010
- 6th CBI Annual Meeting on Late Phase Research, Drug Safety and Risk Management, London 25–26 February 2010
- Late Phase Drug development World 2009, London 1–4 December 2009
- EPPOSI Workshop on Patient Registries for rare disorders Brussels, Belgium 18–19 March 2009 (co chair and speaker)
Contact us
Elizabeth Hernberg-Stahl M.Sc.
Late Phase Solutions Europe AB
Tel +46 70 3200 117
e.hernberg-stahl@latephasesolutions.com