Late Phase Solutions Europe AB

Patient Registries

Patient Registries are valuable tools to collect real world long term data.

The definition of a patient registry is "an organized system that uses observational study methods to collect uniform data (clinical or other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose(s)".

Registries for evaluating patient outcomes: a user’s guide, AHRQ No 07-EHC001-1, April 2007

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